I saw Dr. Smith last Monday. He is the Dr. that took out my appendix. He sent my appendix to the lab. The report came back that the reason my appendix looked so different was because it was full of cancer. He said he has never seen that before. I am not saying that never happens he just said he had never seen that before.
Sunday night Ryan and I fly out here to Phoenix again. At 7am this morning I went in for surgery. I had a Nephrostomy Tube put in my kidney It takes the fluid out of my kidney and into a bag I carry on my side. The surgery went really well. I was up within an hour.
So I will see the doctors in about an hour.
I am still having a lot of pain around the pelvic area and I am swelling really bad in funny places. So hopefully they will have some answers for me. We will also see what they are going to do about the raising tumor marker. My CA2729 was over 450.
Monday, February 7, 2011
Another update from Phoenix
Posted by Ro's Lumpy Breast at 11:54 AM 5 comments
Wednesday, January 26, 2011
Update from Pheonix
O.k. I am with you guys I love pictures but I am not at my computer today so no pictures. Sorry. Lots of update. Let's see where to start. I think I told you I had my fifth round of chemo in December. In Jan saw the doctor she decided even though numbers were up we would still do this last round to helpfully keep them from really jumping higher. I think the CA 2729 on Jan 15 was 365 or so. On Fri the 15th I had my 6th and last round of chemo and was giving orders to go a get a CT/PET.
I wasn't able to make that appoint yet. I had been having very bad pain for about two weeks before treatment and had started to take some high doses of pain meds. While on Sunday nigh after treatment on Friday I started throwing up and coming out the other end and lots of pain. So Ryan took my to the hospital. The did a CT scan and thought it look like it was probably the appendix. They decided to put us in a more comfy room upstairs about 4 am. I didn't see the doctor until about 3:45 on Monday he said let go. So 15 mins later I was being prepared for surgery. Everything went well. He did say he had never seen anything like it and didn't know why it hadn't ruptured. So I left the oh so lovely hospital around 11pm that night.
Well we decided to go back down to CTCA and see what they think of numbers being high just to look at everything. In the mean time I am in still in quite a bit a pain. CTCA got me a flight and an appointment the following Tuesday or yesterday a week after surgery.
I thought I had done such a good job collecting all the information they would need here. Long story short we didn't have everything we needed to make any decisions yesterday. They did a CT and I saw the doctor but apparently they have stop doing there own blood work for the CA2729 numbers so we are still waiting on those they take three days before we really decided what chemo to put me back on. He said there is still cancer but it doesn't seem to look as bad and there isn't any in the lungs like they thought there maybe. So he decided to check out the pain I am still having. So he sent my for an ultra sound this morning. The lady showed my what pictures she took. She showed me my right kidney it looked prefect she said then she showed the left. She said that it didn't' look normal. There were 5 black holes that is what she called them. So I will see a doc tomorrow at 2pm. Unless I hear from my doctor soon. So we are hoping thing will be all summed up by Thur Night. We shall see. I guess I am on vacation. I can't say it has been a very pain free vacation and I miss my family already. I know Ryan is taking good care of the kids.
So so long and not pictures but I did update!
Posted by Ro's Lumpy Breast at 8:46 AM 10 comments
Friday, December 31, 2010
2010 Last update
Here are just a few pictures from 2010. We had a great year together as a family this year. We hope everyone else had a great year too.
I started the year on chemo then was able to stop have surgery go back on maintances chemo and then back to chemo treatment a new kind.
Currently I had my 5th round of chemo on Dec 17th. I have had a few reactions...rashes, bumps, aching hips and back, and a few unmentionables. Nothing that hasn't been managable. My last treatment for the set is the week of my birthday. Luckily not on my birthday. Then in Jan I will have a PET scan to see what is going on. I had a CT scan in Nov. It said that my lymphnods are stil swollen and there was something in my liver. So we will know more in Jan/Feb.
I just want to say thank you for all the kindness our family has received over the last three years. I don't think I can say that enough THANK YOU. Again hope everyone had a great year.
Posted by Ro's Lumpy Breast at 10:55 AM 6 comments
Tuesday, November 30, 2010
Nov Update
I am doing well on this chemo. Still not alot of side effects. I still haven't gotten my numbers back from my blood work almost two weeks ago. I had a CT scan this last month. The Doc says I am fine. The scan report says I have spots on my liver and that my lymphnods are still good size. They also suggested I have a PET scan. So who knows what is going on. We shall see what time brings.
We had a great Thanksgiving with Ryan's Family. His grandma and grandpa David where here. We spent alot of time playing cards. It has been a while since we have played cards. We all had a good time. Hope everyone else enjoyed their Thanksgiving Holiday. I was hard to send the kids back to school after a week off.
Posted by Ro's Lumpy Breast at 7:54 PM 2 comments
Saturday, October 16, 2010
update/talks
Time for an update says my mom. So here it is. I have had the second round of chemo. I will be receiving my third round this coming Friday. Then a few weeks after that it is time for a scan. My numbers went up but less then 10 that is good news. I have only had 2 small easy to handle side effects. I haven't lost my hair yet and I have been able to keep up with my family and their activities.
Just a couple of months ago I was asked to speak in church and a few weeks ago I was ask to speak at a fireside. For those of you who don't know what that is it is a mtg where people gather at the church to listen to a speaker and to be taught or strengthened in the Doctrines of the church. I have been working on that for the last few weeks. I will be giving this talk on Sunday. Anyway through preparing for these two talks I have been reminded of the blessings and miracles that have occur ed in my life. I can't say I love to get up a speak but I do love the chance I have had to learn, study and be thankful for all the blessings I have received in the last three years. I know that with out my faith in my Heavenly Father and in his son Jesus Christ that I would not be here. Thank you so much to those who have blessed me and my family with your service and your comments and words.
Posted by Ro's Lumpy Breast at 12:04 PM 6 comments
Wednesday, September 8, 2010
No New News
O.k. so just to update. Nothing to really update. I had treatment on Friday the 27th of Aug. So far no side effects. I was tired on the 3 and 4th day after treatment and one other side effect. So really no issues or side effects happin yet.
Posted by Ro's Lumpy Breast at 12:42 PM 4 comments

