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Friday, September 26, 2008

LotS gOING On!

O.k. I have been told by my mom that I need to update. She asked if it have been like 6 weeks. I said it hasn't been that long. Anyway long enough I guess. So I last left you I was getting a PET scan to see if I had any cancer. The PET scan came back clean. No cancer. So you would think I would be so excited and want to post that wonderful news. Well I was not really wanted to post that because I didn't feel good about those results. Not that I think I have cancer but last time we got good news it was rudely interrupted by a brain tumor. I have been having lots of symptoms still and I wanted some of those things answered.

I had an appointment with Mitra last week. Some of my symptoms I am still having are headaches, blurred vision, dizziness, raspy voice (not at the moment), loss of appetite mainly sugary foods, tiredness, back aches. Anyway when I went in I wanted to know why I am still having all these symptoms. The raspy voice she wants to wait until I have it again. Which I am not excited about but I guess it will have to wait. She also wants my to do occupational therapy. Which is therapy to work my brain. Know they tell me all the bad things radiation can do. So I was suppose to do that this week but it got bumped and I will explain why later. And she also prescribed my a depression medicine. Ryan and I have noticed since the brain tumor was taken out I am a little more blue. Anyway Mitra said that was it for now. They I got a phone call from her the next day saying Dr. Rado wanted to do a spinal tap.

So last Friday I went in for a spinal tap. The spinal tap wasn't painful but the medication for pain was a little painful. Over all the spinal tap went well. I left the Dr. office with a small headache. We went to dinner and I was having a slight headaches but not to bad. By Saturday the headache was really bad. I tried to push through it and do some canning. I went out to the store to look for ring and jars and ended up coming back home. On the way home I had to pull over to throw up a few times. So Saturday and Sunday and Monday I was lying in bed and not moving much. The was the only thing that relieved the pain. Sorry Daniel I have to say thank you, thank you so much for canning my fruit for me and to your family for canning my fruit. That was a massive job and I still don't know how to can. But a big thanks to you and your family. So talked to Dr. Weeks on Saturday who told me what I was feeling was normal. Then when I talked to Dr. Rado's office on Monday they said it wasn't normal. They booked me a bed at Kadlec and I went in thinking they we just going to hydrate me. But before I left I had a blood patch done. I was feeling I thought better and still had some symptoms. I went home Tuesday night. I took it easy on Wednesday. A kind friend kept my kids so I could rest. So on Thursday it was back to a normal routine. Thursdays I do a lot of driving. I made it through most of the morning. Then I wasn't feeling great from all the driving around and throw up again. I was spouse to be at the hospital for my Herceptin but I wasn't going to be able to drive there. So my father in law took my over to my appointment. Dr. said he wanted to order an MRI contrasted and none contrasted. I was so excited no blood patch. Then he called back 1/2 hour later and said he wanted to do another blood patch. So yesterday I had another blood patch. I immediately felt so much better.

The doctor that did the patch explained that the fluid creates a space for you head to float above your spin. Because the fluid was leaking my head was resting on my spin. That is why I had all the symptoms I was having, nausea, massive headaches, back pain, not able to turn my head or eyes to the left.

So today I am feeling so much better. They said the spinal tap everything was normal so I we are back to where we started. I wasn't able to go see Dr. Kris this week and had to cancel because of the way I was feeling this week. So maybe better news to come in the coming weeks.

For now I am so excited to be feeling more normal!!!!

16 comments:

Brandee Hogg said...

Oh My Gosh!! I am so glad they finally got you all straightened out! You are such an amazingly strong person! Keep hangin in there! I don't know how to can either but would love to learn. Maybe we'll have to have a canning "class". hahaha

Brandee

Sleepless In St. George said...

Thank goodness the PET came back clear...what a blessing...I will be praying for everything else to get back to normal. Being so far away I don't hear the updates...so it was a very long wait to hear that you were doing well!

Shelley

Sleepless In St. George said...

Oh I forgot to mention...a gal in my ward has a brother in Richland...he is a radiologist! Email me...perhaps he is your radiologist!

Anonymous said...

Thank you for keeping us updated. We think about you everyday.
Love You,
Jeremy

natallie said...

thanks for updating and glad to hear good news. i can't believe how long it takes to get things on the right track with the docs. you have been so patient...i hope you feel "more normal" for a long time to come :)

Anonymous said...

I'm glad you were able to feel good enough to update your blog. I love to read how you are doing. Wow!! Your head with resting on your spine, that's just sounds painful. Keep your spirit up.

Chelsie : )

Mandy Rasmussen said...

I've been thinking about you and praying for you. I am glad things were straightened out! You are one tough woman! Let me know if you need anything!!

Anonymous said...

Glad you are feeling better. I've been thinking about you a lot. Praying everything goes well. We love you.
Aunt Linda and Uncle Carl.

Anonymous said...

YEA!!!! Rochelle that's so great, I've been thinking about you. so glad they figured out your headaches, i'm so happy that your feeling back to normal. i'll tell my family they will be so glad to hear the news. Hey you lucked out of missing canning hahaha

Love Aunt Lynn

hatch said...

I have been wondering how this was all working out! I am so happy to hear that you are feeling better! That is great news.

Cherie said...

What the heck! Can you just get a break or what??? So glad you updated since I'm so horrible about calling to find out how you're doing! You guys still up for boating? We got a boat and of coarse my hubby has to get all the use out of it that he can before the river starts flowing with ice chunks, and even then I think he would still be out there! Glad to hear you're feeling better. I'll call you soon!

Stacia said...

Glad you are feeling more normal. I hate having symptoms and not knowing why! Been thinking about you and talked to Ryan for a few minutes on Sunday. Praying for you still.

PRP said...

Hooray!

Sorry about the yucky procedures but I guess it's all worth it if you're feeling better now.

Andre said...

I'm sorry you are having a rough time. I wish I could be of more help. Please let me know if we need to do something about piano lessons. Would it be easier if I come to your house? I will call you this week.

Anonymous said...

Thank you soooo much for updating. I love to hear about how you are doing! I am so glad that you have been blessed with feeling better. We will keep sending our prayers your way.
Love,
Teacher Kathy

The Lassen Family said...

So glad all your scans are clean!!! I had a spinal headache for like 2 weeks after my tap--they never did do the blood patch-----erg! it is H-O-R-R-I-B-L-E!!! So glad it is gone!