O.k. this is what Dr. Kris had to say about the scan.....
The few things I was worried about he said were all o.k. they were normal. The only thing he is worried about is C5. The report said it wasn't healing but it also didn't say the cancer was going there. So he said make sure you talk to Dr. Rado about it. So it is almost offical just waitting to see Dr. Rado in a few weeks but Dr. Kris said this is great news the best news. The cancer is gone. Can you believe it!! Just one more Dr. to give me the good news and we are done for the most part!!!
Dr. Kris did some adjusting in my neck and back.
I also have been sneezing alot and said I felt like I might be alergic to something. So he did some test and we found out I am alergic to grass. Alright I wasn't before but I guess I am now.
He also found an infection in my throat he gave me some vits for that. So hopefully that clears up soon.
Thursday, May 29, 2008
O.k. this is what Dr. Kris had to say about the scan.....
Posted by Ro's Lumpy Breast at 4:09 PM
Wednesday, May 28, 2008
Well, I just got the Radiology report from Kadlec from the PET scan. I didn't know they were going to send it to me. I have a Dr. Kris appointment tomorrow so I thought I would just hear the report from him. But they sent it to me. So I am going to give you the report in full. We will see what Dr. Kris says tomorrow and what Dr. Rado says the first week in June. Anyway here is the Radiology report....
The previous extensive metastatic disease visualized on the scan of 10/09/07 has all completely resolved. There is no evidence of malignant FDG uptake noted in the left axilla, left neck, or mediastinum. All previous malignant uptake in the left breast has resolved in addition, the nodular masses throughout these regions have completely resolved on CT imaging. Liver uptake is now uniform and normal and the prior low attenuation defects on CT images on the liver have resolved.
Prior bone metastases of T6, T9, T11, L2 and L4 show sclerotic healing. The prior lesion on the C5 vertebral body does not show any healing sclerosis. The prior left ilial and ischial metastases show healing sclerosis as well. There is peresistent chronic pars defects of L5, without subluxation.
There is physiological uptake in scalene muscles of the lower neck. There is physiolgic uptake of the FDG in the pharyngeal lymhoid tissues, muscles of the floor of the mouth, and salivary glands. There is some physiological uptake in the sigmoid colon and uterus, not malignant. There is some minimal uptake in teh region of the nipples of both breasts, a phsiological occurrence.
1. There has been complete resolution of the prior widespread metastatic neoplasm. Furthermore, all of the nodular soft tissue disease of the chest and abdomen has resolved on CT images. Bone metastases now show sclerotic healing.
2. There is no obvious active malignant disease at present in the range of the scan.
So can you believe that!! I think that means everything is gone. There are a few questions. But I think I am done with all chemo treatment!!!!! That is so good my hair is coming back in and I didn't want to have to start over again. It has been 7 or 8 weeks off chemo and the hair is finally coming in. I really didn't want to start over. YAH!!!
Posted by Ro's Lumpy Breast at 7:35 PM
Sunday, May 25, 2008
Our family took a much needed vacation. We had planned a trip to Disney last October and were unable to go at that time. Since I had a good break and was feeling great and we got very cheap tickets we decided to go ahead and go now to Disney instead of in October. We all had a great time. I little rocky the first day but it got smoother was the week went on. No one was ready to come home. I can't say it was restful but it was so much fun and enjoyable to be with family and friends.
Posted by Ro's Lumpy Breast at 11:41 PM
Saturday, May 24, 2008
Friday I was finally able to go shopping after being home for 3 days. My family was so happy there was finally food in the house. But later in the day I started feeling sick. Like I had the flu. I had a fever and was ache all over and my bones ached. I was thinking great I have gone this long with out being sick now I am sick. Then all of the suddon I woke up in the middle of the night and remembered that the nurse told me I could have flu like symtoms from the Herceptin. I didn't before so I didn't think I would this time but I guess by it self it can cause the flu like symtoms. So I was so happy when I woke up this morning and the fever and aching was gone. I am hoping that doesn't happened everytime. That could get old every two weeks. I guess I have to remember it is better than having cancer.
Posted by Ro's Lumpy Breast at 2:12 PM
So Thursday I had a long day of appointments. I started off the day with a PET scan that started at 7:45 and went for three hours. I was able to take about an hour nap while I was there. They gave me 2 Xanx this is to help with the small space they put you in during the test. I only tell you this because it plays a part later in the day. So after the scan I had just enough time to run home because I had forgotten my cell phone. Then I headed back over to the hospital to have my infusion of Herceptin and Zometa. They also gave me Bendryl with my meds. I only tell you this because again it plays apart later in the day. As soon as I was done at the hospital I run by my mom's to pick the kids up and then headed down to Dr. Kenzie's. Kamden, Ryan and I all had appointments at 3pm. I couldn't wait until another week to see Dr. Kris my back was out and killing me. Anyway I on the way home I could barley keep my eyes open. When I got home I took a nice very long nap and got up just in time to go right to bed. I think the Xanx and the Zometa knocked me out or relaxed me just enough that I slept. Oh, I almost forgot I got my CA2729 counts back when I went into the hospital for my infusion. It is 29! The nurse said the vacation must have done me some good. I don't think she understands how not relaxing a vacation is with kids. But I am so happy to see the number is still going down even off chemo.
Posted by Ro's Lumpy Breast at 2:02 PM
So I am having a hard time finding time to blog. I had an appointment with Dr. Rado on Wednesday the 21st. It was mostly a waste of his and my time. I was supose to have my PET results but I still hadn't even had the scan. I had gotten my blood work done the day before and that still hadn't come in. So he has not very happy. He was able to get me a PET exam scheduled for the next morning. As far as the visit we talked about if the cancer is all gone will we do over kill on the chemo like I have seen them do on other patients. He said no because he doesn't want my body to grow amunoed to another chemo. He feels that the likely hood of the cancer returning is extremly high and he wants there to be options for chemo treatment then. I informed him I will not be returning to him with cancer so there is no need to worry about chemo treatment down the road. I have been having trouble with my eye it has been blurry for a week or so. So Dr. is making me an eye apointment with an eye doctor to have that check out. I also told him about losing my voice twice since I have been on chemo and going horse alot. He said we would see how that goes being off chemo. We talked about treatment after we are sure the cancer is gone. He said I will be on Herceptin for a year for sure and then we would see from there. I will also be on Zometa(sp?) it's for my bones. I will do Herceptin every other week and Zometa once a month. Both are I.V. drugs. So I will still get to see my friendly nurses often just not quite as often. And I will start seeing Dr. Rado every four weeks instead of every 3 weeks. We will continue doing blood work each time and a phyisical exam at each visit. Then every 6 months I will have some type of a scan to keep an eye on everything.
Posted by Ro's Lumpy Breast at 1:48 PM
O.k. I got this email this week and I love it so I decided to share. I hope you enjoy it too. I makes me think.
The Fern and the Bamboo ~
One day, I decided to quit. I wanted to quit my job, to quit my relationships, to quit my spirituality; I even wanted to quit my life.
I went to the woods to have one last talk with God.
"God," I said, "can you give me one good reason not to quit?"
God's answer surprised me. "Look around", God said, "Do you see the fern and the bamboo?"
"Yes," I replied.
"When I planted the fern and the bamboo seeds, I took very good care of them. I gave them light, and I gave them water. The fern quickly grew from the earth. Its brilliant green covered the floor. Yet nothing came from the bamboo seed ~ But I did not quit on the bamboo."
"In the second year the fern grew more vibrant and plentiful. And again, nothing came from the bamboo seed ~ But I did not quit on the bamboo."
"In the third year there was still nothing from the bamboo seed ~ But I would not quit."
"In the fourth year, again, there was nothing from the bamboo seed ~ Still, I would not quit."
"Then in the fifth year a tiny sprout emerged from the earth. Compared to the fern it was seemingly small and insignificant ~ But just 6 months later the bamboo rose to over 100 feet tall. It had spent those five years growing roots, which made it strong and gave it what it needed to survive. I would not give any of my creations a challenge they could not handle," God said to me.
"Did you know, my child, that all this time you have been struggling, you have actually been growing roots? I would not quit on the bamboo ~ I will never quit on you! Don't compare yourself to others. The bamboo had a different purpose than the fern, yet they both make the forest beautiful. Your time will come," God said to me, "when you will rise high."
"How high should I rise?" I asked.
"How high will the bamboo rise?" God asked in return.
"As high as it can?" I questioned.
"Yes," God said, "give me glory by rising as high as you can. And remember... I will never leave you, nor forsake you. I will never give up on you. I will never, ever quit on you."
Everyone has days when they want to 'quit'. When there are struggles or obstacles in life, remember we're just growing roots!!
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Posted by Ro's Lumpy Breast at 1:45 PM
Tuesday, May 6, 2008
I had a Dr. Kris appointment on Thursday. It went well. He says my cancer isn't stable yet but he is very excited about my 36 CA2729 count. I needed a lot of adjusting. We talked about stay on some of the vitamins and going off of others. He said my body seems to be recouping and emotional I am doing good. Good news all around.
Posted by Ro's Lumpy Breast at 2:17 PM
This is a picture of our girls night out or Bacholarett Party
This is a picture of Cody and Jillian coming out of the temple after the sealing.
This is a picture of the family waiting for family pictures at the reception
Here are three of us girls enjoying a nice quite Sunday afternoon together. Kim, me and Bailey.
Here is a picture of what my dad always does when he has a moment.j/k He only does this on the stand at church.j/k I love you dad!
Well just a quick update on a fun weekend I had. My sister Bailey flew in on Monday night and spend the whole week with us. She just went home on Monday afternoon. I was able to take her down to Dr. Kris with me and she was able to see Dr. Kenzie with Kooper. She likes Dr. Kenzie and they took good care of Kooper. The kids and I enjoyed having Bailey here to play and visit with.
My sister Chauntel got here at midnight on Thursday. I took her and her two kids down to Dr. Kenzie on Friday. They also had a nice visit with Dr. Kenzie. Chauntel was able to stay at our house for the weekend. The kids loved playing with there cousins they don't see very often. They really didn't want them to leave.
We had a busy weekend. We spent half the day on Thursday at Dr. Kris's and then 1/2 the day with Dr. Kenzie on Friday. After we were done we joined the rest of the family sitting up for Jillian's wedding at the church. She was going to have an out side reception but with the not so nice weather on Saturday we decided to do it inside. It only took 4 1/2 hours to set up and an 1 1/2 to take down on Saturday. It always seems to take long to set up then take down. Then we had a girls night out we went out to dinner and shopping. It was fun to be all together again. I can't remember the last time we were all together and I don't think we have ever been all shopping together. It was fun!
Saturday was another busy day we were up again at 5:30am. We had the sealing in the morning along with 2 baseball games a luncheon with Cody (grooms) family and then home to get ready for the pictures at 3:30 and then reception from 5-7pm. Thank goodness we were done by 7. We were all cleaned up and home and in bed by 9:30.
We had 9am church in the morning which we were all ready and there before 9am WOW. Then we were able to sit and visit and relax until 4pm when Jillian and Cody opened all the wedding gifts. Just a funny. Baily and I asked well how much money did you get. She says $120.00. Bailey and I said well we gave her 80 so she only got $40 from all of the cards. We were a little confused. We then spent 20 mintues looking for the cards when my mom finally remembered she had never brought them out from her room to open. Needless to say they ended up with more than $120.
The kids and I were so sad to see the aunts and cousins leave on Monday. We are looking forward to see them all again hopefully soon.
Posted by Ro's Lumpy Breast at 12:22 PM